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Results of my MRI scan
Time line of the story at: http://www.livejournal.com/users/matthewp/157130.html
I have a 12cm x 6cm tumour on my right sciatic nerve. It's largely benign.
This much I knew.
It's not a plexiform neurofibroma which I first thought. I've forgotten the word used (and will research it later when I've finished work), but I've been referred for neurosurgery at Hope Hospital.
(Update @ 2004-09-11 T 1500: It's a schwannoma)
I have a genetics 'counselling' appointment in two weeks to discuss my options and to decide whether or not I would like to go down that route.
I'd like to find out more about the risks; research and instinct tells me that if the surgery goes wrong it could cause walking difficulties. OK, so I'm being melodramatic, but I'd like to find out the real issues. If the risk is too great I'll not go for the surgery. It's benign and there is no residual pain. (It's only sensitive to pressure and I've learned to deal with that - for example by crossing my legs at the ankles when sitting to keep the weight off that leg)
I have a 12cm x 6cm tumour on my right sciatic nerve. It's largely benign.
This much I knew.
It's not a plexiform neurofibroma which I first thought. I've forgotten the word used (and will research it later when I've finished work), but I've been referred for neurosurgery at Hope Hospital.
(Update @ 2004-09-11 T 1500: It's a schwannoma)
I have a genetics 'counselling' appointment in two weeks to discuss my options and to decide whether or not I would like to go down that route.
I'd like to find out more about the risks; research and instinct tells me that if the surgery goes wrong it could cause walking difficulties. OK, so I'm being melodramatic, but I'd like to find out the real issues. If the risk is too great I'll not go for the surgery. It's benign and there is no residual pain. (It's only sensitive to pressure and I've learned to deal with that - for example by crossing my legs at the ankles when sitting to keep the weight off that leg)